Showing posts with label Stupid Spine. Show all posts
Showing posts with label Stupid Spine. Show all posts

Tuesday, January 10, 2012

Stating The Bleeding Obvious

Joint shrink session today, me and hubby.

Full of sound and fury, signifying nothing.

"Thou must have nought to do with the other!" cried the shrink.

Nice to have someone official-like to confirm my thoughts on the matter, but where exactly will I find a full-time live-in carer?  Its all very well spouting "best interests" blah blah, but I still need someone to pick me up off the floor when my back slips out and I cant move for two weeks, or look after the kids when I'm suddenly comatose from my medications.

Its a fucked situation here and no one's best interests are being looked after and, short of a live-in minion, I cant see how that is ever going to change.

I should have listened to my mother when she told me, age 8, to never get married.






Thursday, July 21, 2011

The Post That I Cant Say Out Loud So I Will Write It Instead

**Warning: this is a LONG post. It is not a happy post. It is not a post to read if you are pregnant.**

The trouble with reading other blogs is that they may one day contain something that is very close to your heart. And that makes you think. And you may not like thinking.

Then in order to avoid thinking about it all the damn time, now you find that you have to write about it and you didn't ever want to write about it but here it is, in your head, so it wants to get out.

I'm looking at you, Madame Bipolar and MrsWoog

So. Here we go.


From the very beginning, the existence of my daughter Ella is very much caught up with negative events.  She was not, unlike Felix, tried for and desperately longed for. She was the "you have got to be fucking kidding me!" baby, the "how the fuck did this happen?" baby, the "anniversary" baby.  Not planned, not even considered to be a biological possibility after the hoo-hah surrounding Felix's conception. We "came to terms with" this baby.

November 2007 was marked by 3 life-changing events.

1. Monkey Boy and I went out(!) on our own(!) to a Crowded House gig (!!!) which was magnificent and wonderful as you would expect.
2. At that concert, I sat down and made the mistake of "chair dancing" which is a bad idea at the best of times because you look like Steady Eddy but more so on this occasion because my back went "Even I know chair dancing is wrong."
3. 2 weeks later it was our anniversary. 'Nuff said. 2 weeks after that I knew, even before peeing on the stick...

So I had managed to rupture a disc in my lower back, by sitting down. Normally this could have resolved itself over a number of months with rest. When you’re pregnant and you have the joint-loosening hormones released, and the additional weight increasing right at the level of the rupture...well, not so much on the resolving.


By the time I was 12 weeks pregnant, I could hardly walk. By the time I was 20 weeks pregnant I was taking Panadeine Forte and seeing the hospital physio, which didn't help at all. By the time I was 26 weeks I was taking PanFortes 2 hourly, round the clock, and begging for them to take the baby out so I could have decent pain relief. I couldn't walk, I couldn't stand, I couldn't sit.  At 33 weeks I finally got an MRI which showed the disc herniation. I knew what it was from the start, having had one before (and had surgery to fix it. Same disc, other side), but no one would take me seriously, not until the MRI.  Even then, to get the decent pain relief, I had to cry hysterically and act like the crazy female and swear at my obstetrician that this state of affairs was unacceptable and if he didn't help me I would take my own life. I was serious.  I was given Endone.  I was referred to the Mental Health Midwife, who marked my file with all sorts of big red stickers.

Endone allowed me to sleep. Blessed blessed sleep, no longer on my hands and knees, rocking on my bed, back and forth back and forth all night while wet fire engulfed my leg as it was torn off via my big toe.  I still needed it two hourly but it gave me some relief. I loved my obstetrician from that point. At 38 weeks we all decided enough was enough. Two hourly Endone, and I can still barely walk and the pain is constant, it never stops not for a second. Ella will have to be kept in the NICU for at least 5 days and be monitored for Neonatal Abstinence Syndrome - or withdrawal from the narcs to you and me.


So I am induced. Have a read of this post and this one  to see how well that worked for me the last time.  Or more to the point, I am induced (Day 1), and induced (Day 2), and induced (Day 3), and induced (Day 4), and had my waters broken and was put on a Syntocinon drip and 21 hours later of 2-minutely contractions (Day 5) I am still only at 4cm dilation. I will never ever forget the doctor’s face as she looked at me and told me we had no choice but to do a C-section. The next half hour is full of memories that I can’t even write. Memories of distance and of pressure to do what I don't want to do, of fear. Raw, primal fear. Memories of things once done and said can never be undone. Of the end of things. Of a line drawn in the sand.

And then there is the operating theatre. And the yellow paper curtain in front of my face, hiding things to awful to see...  And the woman at my head, the anesthetist. Monkey Boy next to me.

And then pain.

White hot searing pain.  Stop. Stop Stop Stop.

I don't know if I screamed it over and over out loud or just in my head. The epidural had worked at surface level only. Once the scalpel had got past the first few layers of skin...  Monkey Boy started yelling at them to stop. "We can’t go on like this" I remember hearing someone say. MB being told he had to leave. Leave? No! Saying goodbye, I thought I was going to die. Then the mask, and I didn't care if I died. "Breathe, just breathe."

She was born - without her parents even aware of it - blue, the cord wrapped around her neck twice, meconium swallowed and inhaled and not breathing. I lost 1.2 litres of blood.




I hear "it’s all over, you've had your baby." Am I in the 1950s? A young child is screaming in a nearby cubicle (tonsils) but he is not my child. Where is my child? Is she ok? Why isn't she here?  The epidural line is still in and they bump up the level because my pain is too much, but the epidural didn't work you fuckers! What is the point in doing this??  It meant I didn't "get my legs back" for over 24 hours.  Utterly stuck. Can’t move. My legs are not mine, they are lumps of meat that are pinning me to the bed.  This causes even more pain in my spine and my legs and feet are now swollen to the point where the skin almost starts to weep.


And Ella. My baby. The one for whom my soul was dragged to hell and left there.  I don't see her for 7 hours. MB held her in the NICU.  He had to ask the staff where the hell she was. No one told him. He took photos, and a short video of her, and I look at them over and over.  When she is brought in and I get to hold her for the first time, I am allowed 20 minutes together. I won’t see her again until her first proper feed, in a few hours. When she screams or when they have staff. If they have staff.

I feel like I went through all that time and pain and damage to my body for nothing. I am alone, no baby. Just pain and immobility. Then suddenly we get caught up in the hospital admin game of finding places to put people.  We get shunted from room to room. Labour Ward is full, women are in full labour in the corridors. 4 times we were moved, with all our stuff. A ridiculous amount of stuff really, but 5 days in the Labour Ward...


The catheter and epidural line are removed after 24 hours. (Day 6)  The catheter has damaged my urethra: It feels like my urethra is being pulled out continuously. (This is a feeling that doesn’t stop until close to a year after delivery.) The doctor comes in to tell me that I am borderline for needing a blood transfusion because I lost so much blood in delivery. Because it is borderline it is my decision whether to have it or not. If I don’t, it will take about a month for my iron levels to come back up to normal and I will feel shit for that month. Who the hell lets a delirious woman make judgement calls like that? After what they have done already, there is no way I am going to agree to more interventions.


I start taking tentative steps, but I can’t do it. I need a wheelchair to get to my baby. Get me a bloody wheelchair! And so I go to the NICU and I see what will be her home for the next 5 days, and see all the other babies, babies who have been there for weeks and will be for weeks more. Not mine not mine please god not mine. We learn their observation and coding system for NAS, we learn the procedure in the Breastfeeding Room, and I hold my baby girl for the first time. She is so beautiful, so soft, and yet I feel nothing.




While MB is in the hospital with me, I can be in the NICU as often as I want. Once he leaves, I am up to the dictates of the hospital and staff levels. By Day 7 I can walk, very slowly, painfully, with much help. I can’t get my slippers on because of the swelling, but I can get to my baby under my own steam and I'm bloody well going to. The NICU is a 2 minute saunter for a normal person, for me it is 10-15 minutes.


She won’t latch onto the breast properly. She snuffles around trying desperately to find it but will not latch. So she isn't eating. Here's another failure to add to the growing list. She is on formula via a naso-gastric tube. They decide to give her antibiotics because she swallowed poo. She has a line in her nose and another one in her hand, securely bandaged like a big boxing glove. There is so much stuff attached to her, I can’t get to her at all.

MB has been sleeping in the hospital with me, on a camp bed. He went home one night to make sure Felix was ok with Nanna. Sadly for me, he chose Day 3 to do it.  Everyone knows Day 3 is the killer after delivery: the tissue box will be too hard to reach and you will start bawling. I had no baby with me, the delirium of 5 days labour and no sleep for 8 days, the trauma of the C-section, the pain of my spine, the pain of the C-section, and no baby with me. Ella’s NAS scores are borderline, which means that she may have to stay in hospital for another 2 weeks and be given morphine.  And there is an awful ruckus in the room next door. Furniture being tossed around. Hushed voices in the corridors. Then Police. Every staff member is in the nursery, around one baby. I have no idea what happened, but it scared the hell out of me. I find out months later the mother had killed her baby. 

This is the start to the Day 3 Baby Blues. For me it was the start of psychosis.

The phone calls from the NICU are incessant this day. There is no MB to wheel me down there and seemingly no staff either. One trip is enough and now I have to make several, on my own. No help from the hospital for the woman who can barely walk.  By 10pm I can no longer cope. The phone rings after I just get back into my bed from being in the NICU for a feed. She is crying again, come down.  WTF???  Thoughts reel through my head: stick a plug in her face, give her a bottle, give her Phenergan, go away, just go away I can’t deal with her.

So I call for a nurse who never comes. But the NICU keep ringing. Incessant.bloody.ringing.  (Fucking deal with her yourselves, I can’t bloody get there.)  Still no nurse, so with incredible pain and utter exhaustion I drag my arse out into the corridor and hold onto the railing, and I just can’t make myself walk down there again. And the tears start rolling, as they do.  A nurse is coming, asks me if I am alright. Bloody stupid question. I try to tell her but I can’t get much sense out of my mouth. Pain, walking, bloody baby, NICU, can't just can't.

"Well there's no point crying about it, is there? Is there? That won’t make it any better." 

Is this woman for real? It is the final straw for me. If I had enough spirit left in my body at that point I would have decked her. The best I could do was look at her and cry more. I silently beg for my mental health nurse to come and rescue me. But she never comes .

Nurse Hardarse rang the NICU and asked them to bring Ella to me. Great, fine, but they leave me alone with her. That's sensible, right?  Distraught mother with known mental health issues left completely alone... (I wonder now if that is what happened in the room next door...)

I fed her. She wasn't really interested. I needed to go to the toilet. She started crying, and it seemed the part of my brain that was used to babies crying and knew i could leave them for 30 seconds had been removed.  I dragged her bassinet on wheels contraption into the toilet with me. Why?? I don't even know. She wouldn't stop screaming and my how that echoes in a tiled room. 

I wanted her gone. I didn't want anything to do with her. And I hated myself for it.


I have no feeling in parts of my right leg.  No one knows why. (Try the epidural placement, numnuts.)  They put me through another MRI.  Have you had to get into an MRI machine 3 days after a C-section when you can’t feel your feet and your back feels like it is folding you in half all by itself.?  I can’t stand, I can’t sit, I can’t lie down. The MRI shows the herniated disc. Wow, yes it’s still there. They don't know why I suddenly can’t feel big patches of my legs: Sudden Onset Post-Partum Patchy Leg Syndrome, first case ever reported.  They are all idiots.

With Ella’s NAS scores so high, we are looking at not going home with her. We ask for the Parents' Long-Stay Room.

Nope. You can stay in this room here, but that means that you are not actually a patient in the hospital and no nurse will come to help you.

I live a 1 hour drive away, which I can’t manage anyway because I have this spinal injury and I can’t sit in the...

 Nope. Other mums do it.

Other mums don't have my spinal injury.

Express your milk and have your husband bring it in every day. 

Eventually they realise that they need to check the nerve responses in my legs (checking for damage from their fucked up epidural) so I get discharged to the “Non-hospital Room” and then readmitted within the space of 3 hours.


Day 10, and Ella is finally given a clean bill of health. Nothing on her blood screens at all, apart from all the drugs they gave me during delivery. No narcs! No Endone! I didn’t harm her in utero!  It frightens me that she came so close to being put on morphine for 2 weeks on the basis of an arbitrary and subjective scoring system.  Its 5 days since delivery and I am so delirious I am unable to see clearly.

My discharge meds in the morning consist of two Endone tablets, which is a four hours’ worth of pain relief.

What’s this?

It’s all we are going to give you, mums aren't normally sent home with Endone

Most mums don't come in here ON Endone…

You will have to see your GP.

And we were sent home. No mental health evaluation, no post-trauma counselling, no referral for post trauma counselling, no social worker visit, and no "we're sorry". 10 days, 1 baby, 1 new source of PTSD, 1 case of Post-Partum Depression, 1 case of Post-Partum Depression in baby's father, no family supports at home. 

The red stickers on my file were never looked at. The fact that my labour was 5 days long was never written in my file. The fact that I was inadequately anaesthetised and could feel them cutting me open was not written in my file.

“Length of labour: no labour” it says.  

It was all a bad dream. My file says it never happened.


So we went home, taking with us much more than we bargained for.  Within a week I was thinking up ways I could get rid of her. (I know, we all joke about this when they are being little shits, right? I actually wanted to get rid of her.) I considered the options: Its cold outside at night, she wouldn’t last long. Hide behind a bush; no one would see what I did. (What was I going to do? I didn’t think that far, it’s pretty obvious my thinking was totally fucked at this point.) Give her to MB's parents.  Just get her away from me! I felt no love, no connection. I didn’t hate her; I just thought she would be better off not with me. I felt sorry for her because she had me for her mother.  I looked for signs that she might love me: anything. I didn't see a thing. To my mind she hated me. Fair enough too, I thought.
And then, after a week, the panic attacks started whenever we were out. I wanted to scream, I wanted to vomit, I wanted to run run run and never stop. I felt like I would explode. The fear, the inescapable fear would grip me from nowhere and toss me on a sea of anguish from which there was no escape.

No one wanted to assess me. We had a CAFHS Nurse and a Mothercraft Helper in our home every week.  No one did anything, even though they both reported to the hospital they were worried about me.  I knew that I was not right but I couldn’t communicate this to anyone. My GP notices after 2 months that I am severely depressed.  She asks how I feel but I dare not tell her about my thoughts towards Ella.  She checks my thyroid and I have  Post-Partum Hyperthyroidism. I have lost so much weight, I am running around like I run a meth lab, I don't want my baby and it takes 2 months to pick it up???

With hindsight, it is clear that I should have been in an institution for Nutter New Mothers I look back with red hot shame at the things I thought of doing. When I see photos of Ella at 3ish weeks old, she is clearly smiling at me, clearly looking at my face with love. Yet at the time I couldn’t see it, not one bit of it. It wasn’t until she was about 3 months old I recognised a smile from her and thought “Ok, now I can mother this child.”

Thankfully, there is a lot of information freely available about Post-Partum Depression. Signs to look for, what to do if you need help, support groups, celebrities opening up about their own experiences, etc.  How about we also take a good look at one of the potential causes of PPD: how we are treated in the days immediately following the birth of our child. How much support we are given by those caring for us, whether we are listened to at all, whether we are given a chance to “debrief” particularly if the birth was a traumatic one, whether anybody stopped to ask “How are you? Are you coping? Is there anything you need to talk about?”

Not one person in that hospital bothered to ask me how I was. How did I feel???  I was in shock. I was severely traumatised. (I still am.) I wanted to die.

Had someone allowed me to process what had just happened to me, in a supportive environment with trauma counselling, maybe I wouldn’t have gone home with thoughts of killing my own child.

\

Monday, June 20, 2011

How The Fuck Did I Get Here, Then?

I know there was a time when I was happy.

Somewhere in between meeting Monkey Boy at the age of 33 and the shit going down with his mother over our wedding plans, I was happy.  Deliriously happy, as one is at the start of every relationship I suppose, but even more so because I knew beyond a shadow of a doubt that he was The One.

Unfortunately, I was at the end of a 9-month drug binge at the time we met. A binge that was helping me forget the incredibly abusive relationship with a brilliant and talented man who unfortunately had Bipolar Disorder with psychosis and self-medicated himself with 5 litres of cask wine every night. A relationship that had ended only with a Restraining Order after 4.5 years of trying. A binge that was helping me forget that my youngest brother had committed suicide one month before I ended that relationship, and that he was the second of my brothers to make that choice.  A binge that helped me forget that people I considered my friends sexually assaulted me in a hotel room the week after I ended that relationship and that the police would do nothing about it.

So I think its fair to say that I was well fucked up around that time. *Actually a gross understatement of the matter.

Being at university, drugs were freely available, always on offer and (it seemed to me) the perfect answer. *They are not and never will be the perfect answer to anything.  And they certainly did help me "forget" my troubles. When you are high on speed and ecstasy almost every weekend, and the good old green every day, you are having a damn good time in your own head.  But the bills aren't getting paid, and there is no money for food and everything else is falling to shit around you because all you do is party.

So when you meet someone who is nice, and decent, and the brother of your best "party friend" and he LIKES YOU, and he meets every criteria on the list you wrote down in your diary (while on drugs) re qualities the perfect man must have, well its rather easy to make some decisions that in hindsight might have been better made...well..sober.

Never mind, the decision was made and we were married. And because there was a passive-aggressive showdown about our wedding plans courtesy of Monkey Boy's mother, (who has several posts in her all to herself) his family did not come to the wedding.

Strike One.

Two days later, on our honeymoon I had Prolapsed Disc #1 followed by six months of unbearable pain that my doctor seemed unconcerned with alleviating in any way. Monkey Boy was halfway through his Honours Degree, which he had to give up so he could look after me.

Strike Two.

I had surgery, finally. Hurrah! It fixed the pain, by taking away part of my spine in a procedure called a Hemi-Laminectomy. Ok, whatever, at least it didn't hurt anymore.

So then I thought: lets have a baby! Fabulous idea, especially for someone who never ever wanted to have children (me) with a loudly ticking Biological Clock.  Then comes the miscarriage..

Strike Three.

My brain is OUTTA HERE!  Major Depression comes and overstays its welcome.

Our lives become a hell of TTC and HCG and TWW and OPK and Semen Analysis and timing sex and heartbreak after heartbreak after heartbreak.

Until, almost two years later, on the day we are at the IVF clinic being told we will be starting our first cycle in a couple of months and we are freaking out about the whole idea, we were completely unaware about this.

Hooray! We have a baby, and he's awfully cute and healthy and we loved him heaps. He was the impetus for a reconciliation with Monkey Boy's family. But we have no idea what we are doing with the strange little creature though, and he doesn't sleep, and he doesn't feed properly and he doesn't put on weight and I cant produce enough milk no matter what I do so now of course I am a failure, and there is more stress and no sleep.

But somehow,  after 18 months, there was enough sleep to produce some rather unexpected changes.

The thing was, we were not planning on another child. At all. Felix was the miracle baby. Another child was statistically impossible. Goes to show what you can take from statistics.  The other thing was that the very first day of the pregnancy I managed to prolapse a disc again. Same disc as before at L4/L5 but on the other side. The surgery that fixed the initial injury in 2004 had created a weak point, and my stupidfuckingspine decided "wheyhey! Lets smoosh out that way".

So imagine, if you can, a ruptured disc that presses on the sciatic nerve and causes indescribable pain happening at the very beginning of a pregnancy. All those long months ahead of you with increasing pressure on the back, on the pelvic joints, the loosening of all the joints thanks to stupid hormones. The doctors saying "well you're pregnant, you cant take anything."  Imagine pain that starts in the lower back, courses through your buttock and down the side of your thigh, hot, burning hot liquid pain, that then heads to your big toe, where it feels like your toe is being pulled so hard your leg is being ripped off.  Imaging this 24 hours a day. Imagine pain that makes you rock back and forth on your knees for hours on end in tears, unable to walk, or sit, or lie down, heavily pregnant and screaming with pain at times and desperate, desperate, desperate for anything. Even for the pregnancy to be ended there and then so they would give you decent pain relief.

Imagine also that you are dealing with all of this with an 18 month old son, a husband who cannot cope with what is happening, and no support. Imagine your husband grabbing your son, pointing to you while you are in obvious distress and yelling at him: "Look! Look at what you've done to mummy!"

My heart broke right there and then, and I realised that there was a choice to be made and that I would always always make it in favour of my child. Looking back, that was the moment, the very moment that our marriage died.

Nevertheless, I am pregnant and still completely disabled and dependent.  It wasn't until I was 33 weeks pregnant that I was finally given an MRI and some halfway decent pain relief.  To get this I had to scream hysterically at my Obstetrician who wasn't quite understanding that if he didn't prescribe me some decent drugs RIGHTNOWFUCKYOU I would kill myself.  I was given Endone for pain relief, and the MRI showed what I knew it would all along, a disc protrusion on the right at L4/5 impinging on the sciatic nerve root.  Right there that produces a whole new set of complications for the pregnancy and delivery. 

The boffins all said it would be right as rain once I had delivered. That once the pressure of the baby had been relieved then the disc would heal itself. Well we all know that boffins are full of shit, eh?

So delivery, with my back in this state? Horror show. Again, that's a story for another day, if I can bring myself to write it.  Suffice to say at the end, I had more pain in my back from the epidural, pain from the emergency c-section, a baby in ICU being checked for narcotic withdrawal (it turned out she was completely fine) and hospital staff that clearly never bothered to read my file and treated me like a "normal" postnatal woman, when very clearly I was a fucking wreck with very high needs.

I left hospital with severe PTSD from the delivery as well as severe PND which nobody seemed to pick up on even though I knew I had both but was so fucked up I literally couldn't say anything to anyone.  I was completely unable to care for my new daughter and what's more, I didn't want to. This is another story. It was BAD. It was so bad that it let to a complete disassociation from Monkey Boy's family. Again, another story for another day.


I think Ella was at least 12 months old before I got to see a proper Pain Specialist. In the meantime I took a combination of every painkiller on the market, including continuing with the Endone, and I took all of them at doses far greater than was recommended.  It was extremely hard for me to breastfeed because of the pain, and we had been comp feeding since the hospital anyway, so by the time she was 4 months old, she and I preferred to use formula.  I was over my high and mighty stance on breastfeeding. I had to do whatever it took to survive.

And once I was no longer breastfeeding, I decided to try "potentiating" my medications with a glass or two of wine each night. And it worked. It really did. I wasn't drunk, I wasn't even tipsy, I just felt less pain. I had greater ease of movement. I could get some sleep. And so it went on. And on. and on, for almost three years.


I changed medications frequently in an attempt to find the right drug and right dose and right combinations, under the supervision of my Pain Specialist, until we eventually hit on a combination of 4 different medications that, for most of the time, kept the pain at a bearable level. But the alcohol, unbeknown to him, remained part of my secret strategy.

I knew it helped the pain, so I drank from late afternoon (the time of day when I would have used all my energy reserves just coping with being alive and a mother) and I drank until I went to bed.


Three MRI's later and nothing had changed for the better. Quite the opposite, in fact. The L4/5 disc has "dessicated and sequestrated" and there was now also some spinal stenosis and retrolisthesis. There were "white matter lesions" on my brain which still may or may not be MS.  Much talk of Degenerative Disc Disease and permanent and spine is failing and wont operate too risky and I am just tuning out once we get to the word "Permanent".

So my life is a routine of pain medications that would knock most people out, doctors visits, neurologists, pain specialists, psychologists, and social workers whom I BEG for help and yet none is forthcoming beccause I dont fit into any of the right funding pigeonholes. Too young. Wrong type of spinal injury. Not disabled enough. Have someone at home with me therefore no need for extra help.

Except the person who is at home doesnt do all  the things he is needed to do. He takes his stress out on the children and on the person he is supposed to be caring for.  If this were a professional relationship of Carer/Client, he would be fired. Except it isn't, and one cant fire one's husband.  One cant even divorce one's husband when he is your Carer and there is no one else to do the job.

Stuck, with pain, with permanent pain, with a life on narcotics, with a life of dependance and limitations, and with the inability to care properly for my own children, with the inability to work. Stuck in a marriage I desperately want out of and with no clear way out.

How the fuck did I get here? Even looking at all that history, I can see how I end up in a situation where I become an alcoholic, but I cant see how WE - Monkey Boy and I - end up in the position of contempt for each other, and he behaving in damaging ways towards our children, when we started from a position of such love and respect for each other.  I have changed, of course I have, but I don't take my grief and anger and loss of hope out on my kids. 

Or did I miss the signs that were there the beginning that, had I not been drug-fucked, I would had realised meant trouble down the road?

Is this a hell partially of my own making?

Tuesday, June 14, 2011

cant retrieve id

The title of this post is an error message that was sitting there in the Title options bar, being all eerily appropriate.

Cant retrieve identity.

How did I get to this place, where I am nothing, I can do nothing, I see no one, I am not interested in anything, and I know that nothing will change.

Cant retrieve identity.

The discs in my spine are so badly degenerated that there is no hope of getting better. Yet I am "not bad enough" that a surgeon will touch me due to the serious and real danger of being left paralysed if they operate. I am left here, stuck here, waiting and hoping in some macabre nightmare that things will get worse, so that they may get better.

Cant retrieve identity.

I am nothing, in limbo, in a life I loathe, in a marriage that is dead, dependent on someone who isn't dependable, support-less, passive, sad, angry, watching my life being wasted.

How bad does it have to be, if this is "not bad enough"?
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